By Carrie Winans

The Disruptive Women in Health Care blog continually aims to encourage discussion and debate among readers about emerging issues and topics in the health care world. Historically, one of the ways that we have done that is through our weekly round-ups – that is, posts containing summaries and links to some of the big stories in health care news for the given week, with some original commentary and content sprinkled in as well. The way we see it, there is just too much happening in this burgeoning industry; it’s hard to keep up, especially when you’re busy disrupting and making headlines in the health care world yourselves. We know the weekly round-ups have been on hiatus for a while, but are happy to report that they’re finally making a comeback. Each week, we’ll be gathering some of the biggest health care news you can use from at home and abroad for posting on Wednesdays. Feel free to comment on what’s included and send us some links to articles to be considered for next week!

Has your week been too disruptive for you to keep up with the news?  Disruptive Women are on the case!  Here is this week’s round up of some of the most pressing issues here in America and around the world.

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Gruber, director of the Health Care Program at the National Bureau of Economic Research, explains the Affordable Care Act (ACA) in comic book format

Millions of Americans disapprove of the Affordable Care Act without understanding what the act aims to accomplish or how it works.  Dr. Jonathan Gruber’s book “Health Care Reform:  What It Is, Why It’s Necessary, How It Works” breaks down the individual components of the act in order to give Americans a greater understanding of what all it includes and how its provisions will affect their daily lives.  Gruber discussed the book, ACA and the future of health care reform in the United States with an audience at Disruptive Women in Washington, DC last night.

Continue reading here…

By Robin Strongin.  Three years ago, in September 2008, Disruptive Women in Health Care launched with an exciting program at the National Press Club (take a look at our media page to see what we had to say at the time.)

I know, I know it’s October…but hey, we are disruptive so celebrating on the exact day seems so well, ordinary.  And the past three years have been anything but ordinary.  We all had something to say about the new health reform debate and ultimate passage.  We still have much to say about the new law, as well as a multitude of other topics.

One area that I have been thinking a lot about is the exploding area of mhealth (mobile health), remote monitoring, and telehealth.  Technology alone is not the answer of course.  But technology, coupled with innovative care delivery models (think health reform), and patients, caregivers and clinicians more comfortable with smartphones, apps, data sharing and online connectivity have all contributed to a new framework of health and wellness.  Aging in Place, staying connected, eICUs, PHRs and EHRs.  Exciting stuff.

But, like most solutions in health care, success must look beyond the health sector.  Here’s what I mean by that: staying healthy can’t just take place in a health setting or even in your home.  Maintaining your health and wellness or managing your chronic disease or disability requires a connection where ever you are — in other words, Health In Place.  Young people with epilepsy and diabetes still attend school, go on vacation and use public transportation.  Elderly individuals aging in place still travel to visit gradnchildren. And, adults maintaining exercise and nutrition regimens who travel for work need to stay connected to maintain wellness.  The Health In Place concept takes this broad view and will be bringing together thought leaders from not only the health field, but the telecom, travel, automobile and real estate sectors as well. 

The organizers of the 2011 mHealth Summit were so taken with this idea that they invited Disruptive Women to launch the Health In Place or HIP initiative with a reception on December 6th–we couldn’t be more thrilled or more flattered. So SAVE THE DATE:

Health In Place (HIP)™ — Disruptive Women in Health Care is Launching a New Initiative

Tuesday, December 6, 2011, 5:00–7:00 PM
Location: Pose Ultra Lounge & Nightclub–at the Gaylord Hotel in National Harbor (Washington DC)

Overview: The concept of Health In Place™ is built around the idea that our homes are more than just homes, our offices are more than just workplaces, our schools are more than just places of learning, and even our cars are more than just modes of transportation. Thanks to wireless communications and emerging technologies, each of these venues has become potential health and wellness centers or HIP. No matter where we are or what we’re doing, we can be protecting and enhancing our well-being. For this facet of 21st century health care to achieve its full potential — for more Americans to have the tools to link to their caregivers, to protect against and manage illness, while monitoring their well-being — a number of public policy issues are involved, cutting across multiple disciplines from health care regulations and benefit structures to tax policy to technology incentives. That’s why Amplify Public Affairs and the Disruptive Women in Health Care® blog (along with our media partenr, The Hill) have formed the Health In Place™ Initiative — to bring together policymakers and change agents from multiple industries.

 Please join us as we unveil this new initiative.

 Speakers:

• Robin Strongin, President & CEO, Amplify Public Affairs & Creator, Disruptive Women in Health Care — Moderator
• John Marttila, President, Marttila Strategies (a national polling expert)
• John C. (Jack) Lewin, MD, Chief Executive Officer, American College of Cardiology
• Pamela Cipriano, PhD, RN, NEA-BC, FAAN, Professor, University of Virginia School of Nursing, Editor-in-Chief, American Nurse Today, 2010-11 Institute of Medicine Nurse Scholar-In-Residence (and a Disruptive Woman blogger)
• Halle Tecco, Founder & Managing Director of Rock Health (and a Disruptive Woman blogger)

Stay tuned for more information.  And by all means, please come out on December 6th and celebrate with us.

At three years of age, we are not only Disruptive, we are also HIP.

By Rozalynn Goodwin. Everyone seems to be quoting and tweeting the tender line of Miss Aibileen in “The Help”, “You is kiiiind. You is smaaaart. You is important.”

But there was another line in the blockbuster movie that moved me even more. I heard it and the heavens seemed to open. The light bulb came on.

Hilly Holbrook’s new maid is $75 short on one of the college tuitions for her twin sons and asks Hilly and her husband for a loan so she doesn’t have to choose which son should go to college. Doing the ‘Christian thing,’ Hilly refuses, “God does not give charity to those who are well and able.”

Twelve simple words from a fictional 1960’s character summed up our nation’s current political will regarding the poor. And allow me to condense this into just one word: selfishness.

We movie-goers were quick to see the bigotry in Hilly’s statement. The maid and her husband had been saving money from their meager wages for a long time and she wasn’t seeking a hand-out, but a loan she would pay off with her thankless labor. But I was also quick to see the hipocracy in those of us who identify ourselves as Christians regarding the poor–many like this maid are in temporarily tight spots by no fault of their own. I was convicted by the thought that a selfish Christian is just as much of an oxymoron as a Christian murderer. (more…)

Yesterday, Healthcare IT News reported that a study due out later this month found that the addition of social media tools to online health programs seemed to positively influence the effectiveness of the programs. The study, which is being published in the Journal of Medical Internet Research, found that “adding an interactive online community to an Internet-based walking program significantly decreased the number of participants who dropped out.” This is just the latest in eHealth innovations – from mobile health apps to electronic medical records and so, so, so much more – leaving the medical community wondering how eHealth will fare moving forward.

How do you feel about health-related social networking? Would you join an online health program? What concerns – privacy, quality of service, etc. – do you think this presents?

Read the full text of the Healthcare IT News post here: http://healthcareitnews.com/news/social-media-tools-may-reduce-attrition-online-health-programs

The Disruptive Women in Health Care blog is looking for an editorial intern for the Fall 2011 Semester. The Editorial Intern will be responsible for assisting the Disruptive Women team in the day-to-day aspects of managing and maintaining what HealthTech recognized as “one of the top health policy blogs” in the country. This will include not only editing and monitoring content submissions, but also researching and writing posts as well. Ideal candidates for this position might be Journalism/Political Science/English/Public Policy majors with experience writing/reporting/editing (especially for the web) who want the opportunity to develop their blogging and social media repertoire. The Editorial Intern will have his or her own writing (with byline) published on a syndicated site, assist in the creation and implementation of special features, bolster social media communications efforts surrounding the blog and serve as an integral part of the editorial process from start to finish.

Responsibilities include, but are not limited to:
-  Serving as a member of the Disruptive Women editorial team
- Assisting in the day-to-day operations of one of the country’s top-rated health policy blogs
- Reporting and writing for the blog – conducting interviews, covering events, writing posts for publish (with byline), etc.
- Assisting the blog editors in overseeing the editorial content of the blog – copy editing, fact checking, etc.
- Maintaining the blog’s resource sections – including the calendar, multimedia and about tabs
- Assisting in the blog’s social media outreach/communications efforts
- Promoting and providing logistical support for blog-sponsored events

Schedule and Compensation:
- 10-15 hours/week (7 in office, 3-8 remotely)
- Flexible hours
- This is an unpaid internship
- Class credit available on a conditional basis
Note: The office is located in downtown DC. Applications are limited to those in the DC metro area. We regret that we are unable to provide compensation for travel expenses to and from the office.

Qualifications:
- Competency in Microsoft applications, including Word, Excel and Powerpoint
- Exceptional organizational and communication skills
- Familiarity with blogging/online reporting
- Experience using wide array of social media platforms, including but not limited to: Twitter, Facebook Pages, LinkedIn, YouTube, etc.
- Must be able to work effectively and independently as an editorial team member
- Must be precise, alert and attentive to details

Interested? Email a cover letter (detailing availability), resume and relevant writing sample to hditto (at) amplifypublicaffairs (dot) net.

The sky is the limit it seems when it comes to mobile health. Proving once again the myriad possibilities for that smartphone apps present to every facet of the health sector, Orca MD — a company dedicated to producing apps aimed at educating patients and helping them find the most effective treatment for their ailments — just released two new patient education apps – these focusing on cosmetic procedures.
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By Hope Ditto. So if you’re like me and – single or taken, happy or miserable — you disdain Valentine’s Day annually with the sort of unbridled hatred most people reserve for only the IRS and Christina Aguilera’s rendition of the National Anthem, take heart! If you, like me, feel a rush of irritation when you spot one of those sappy grocery store displays (groaning under the weight of the overpriced heart-shaped chocolates it is so desperately trying to promote) or are subjected to yet another of the cutesy, romantic commercials that infiltrate our daily lives sometime after the winter holiday decorations — a contrast in all of their stark, primary-colored glory — are relegated to the clearance section, fear not! As someone who, beginning just after MLK Day, feels an innate sense of impending doom perfectly correlated with the slow transition of my world from the full ROYGBIV color spectrum towards such an abundance of pink and purple I could swear someone swapped my Ray-Bans for rose-colored glasses, there is a (small) glimmer of hope this year!

But if you’re like me and also believe that laughter is the best remedy for any ailment (including a case of what my friends have appropriately dubbed the “Valentine’s Day Blues”), I’ve got you covered [well, CBS Cares does but I’m the one writing about it so I’ll take some credit!]. Not only are their Valentine’s-themed PSAs informative, culturally relevant and just racy enough to keep your finger off the fast forward button on your DVR remote, they are downright hilarious – guaranteed to evoke a healthy laugh from even a “Valentine’s Day Grinch” like myself.

The PSAs are part of CBS Cares’ Valentine’s Day Campaign on Testicular Cancer. Along with airing the PSAs – which encourage men to “do something special for [their] woman on Valentine’s Day” by examining themselves for testicular cancer, because “this Valentine’s Day, why give a diamond when you can give the family jewels?” – the campaign (just one of the several currently being promoted by CBS Cares) offers additional information, resources and social media tools designed to both educate the public and get the word out about testicular cancer prevention. Plus, if you’re like me and detest Valentine’s Day, how can you not support any campaign encouraging your man to forgo the traditional V-Day gifts?! (I recognize that I may be alone on this one.)

CBS Cares is a lot bigger than just this “Family Jewels” bit, though. Created by CBS Television Network in 2000, the CBS Cares campaign is a commitment to use CBS talent to create PSAs promoting a variety of issues — from child abuse to menopause, identity theft to epilepsy and everything in between – in need of a platform. Though it began as just a collection of 15 second or so PSAs, CBS Cares has evolved into so much more. As their website explains, “With Network PSAs as its fulcrum, CBS Cares has grown into a multimedia project involving many areas and talents at CBS: Entertainment, News, Sports, Digital Media, Radio, CBS Outdoor, Communications and Marketing.” Some are themed around a holiday and put into circulation for a set period of time (like the Valentine’s Day testicular cancer one or like this Christmas-themed one encouraging women to get regular pap smears), while others are more general and thus relevant for several months or years (like this one on getting a regular colonoscopy or this one on supporting our troops). There are some “core” issues that the network continues to promote, but staff are always on the lookout for new, underserved causes that could be bettered through a CBS Cares campaign. As time has gone on, the network has not only increased the scope of these mini-campaigns but also their monetary commitment. In 2009 alone, the network scheduled more than $200 million worth of public service announcements. While all of the creative work (talent, copy, production, etc.) is done in-house, CBS Cares notes that “The starting point for every PSA–before scripting begins–is close consultation with experts on the frontline of each field to learn what messages they feel are the most important to convey.”

So, whether you are like me or you are a Valentine’s Day enthusiast who has been counting down the days, shopping for the perfect dress, tearing up at the commercials and walking around relishing in what you know for certain is love in the air (don’t worry, I’m not here to judge), the PSAs are worth a view (and definitely worth forwarding along  if you are like me and lucky enough to have someone special in your life, Valentine’s Day enthusiast or [most decidedly] not).

From all of the Disruptive Women in Health Care, Happy Valentine’s Day!

By Joy Burwell. On Monday, June 7th Health 2.0 took over Washington DC and yesterday the excitement continued with a Disruptive Women in Health Care breakfast. The breakfast would not have been possible without the generous sponsorship of Manatt and the support of The Hill. A huge thank you to this morning’s engaging panelists: Fran McMahon, Publisher of The Hill; Indu Subaiya, Co-Founder Health 2.0; Julie Murchinson, Manatt Health Solutions; Alexandra Drane, Founder and President, Eliza; Marlene Beggelman, Founder, Enhanced Medical Decisions and Linda Von Schweber, Co-Founder Surveyor Health. Robin Strongin, Creator of the Disruptive Women in Health Care blog moderated the program. Below is a very brief summary of the discussions; video and photographs of the breakfast will be posted soon.

L to R: Julie Murchinson, Robin Strongin, Indu Subaiya, Fran McMahon

You may be asking what the term Health 2.0 means and luckily for you Indu Subaiya Co-Founder of Health 2.0 provided us with an answer. Health 2.0 applies the same social networks and user-generated focus as Web 2.0 (which has been around since 2003) to the world of health care. It began as a consumer-driven movement with providers becoming involved a bit later. More recently the concept has grown as a result of its partnership with health care reform. Another noteworthy aspect is its ability to foster data-driven decision-making. Currently, there are about 1000 companies actively engaged in Health 2.0.

Bottom Line: Health 2.0 gives you (the patient, caregiver, provider, payer) the tools to be able to get the information to make better decisions.

To better illustrate Health 2.0, the panelists discussed their companies’ developments. Dr. Marlene Beggelman founded Enhanced Medical Decisions which developed an online medical solution that uses “natural language” search technology, to enable users to quickly and easily find accurate information on drug interactions and reactions.. Linda Von Schweber the Co-Founder of Surveyor Health discussed their software’s ability to create an online medicine cabinet for consumers where they can learn the various side effects and interactions of the drugs they are taking. Eliza Founder and President Alexandra Drane detailed the personalized voice-based service they developed that helps consumers make better health care decisions. All of these technologies are innovative, put consumers in the driver’s seat and support efficient, safe and quality health care.

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By Becca Camp. I am a pre-med student. In the last year, I’ve had the unique opportunity to attend several conferences that shaped my sense of vocation. Perhaps most significant was Mayo Clinic’s TRANSFORM Symposium, hosted by their Center for Innovation; over the course of a weekend, my calling to study care delivery (how to get high-quality care to people who need it the most) was unearthed. Volunteering at TEDMED first left me feeling discouraged; surely there was no way I’d ever make the same impact as the Dean Kamens and Craig Venters of the world. Almost immediately, though, I found myself surrounded by attendees who looked at me plainly and asked, “Why not?” They had no doubt in their mind about my potential, and as the conference progressed, I was able to tamp down my own doubt. With my newfound determination in place, I went to DC10 Summit Series where I was introduced to the people of my own generation who have a concrete plan for changing the world. This year I’ve been able to meet invaluable mentors, and been exposed to incredible ideas.

These opportunities came about largely from my use of networking on blogs and Twitter. I continue to be surprised and delighted by the people who reach out when I talk about things that interest me, and who offer to get me more involved in the conversation at these conferences. Once there, I become the pupil of every person I meet. But naturally, I tend to be one of the only students, if not the sole representative, at every conference I attend. I’m surrounded by very few peers.

The result of these conferences was the discovery of my mission: effecting a paradigm shift in the culture of health in this country. It’s the vision that keeps me committed to writing, studying, and applying to medical school. But when I go back to class, and try to talk to my colleagues about what I’ve learned, I have trouble finding anyone interested in listening. It’s clear that the lack of a shared experience precludes shared enthusiasm. Inevitably, my professors are the only ones willing to engage in conversation about what drives me–and I go right back to being a solitary pupil. Broaching topics such as care delivery with my pre-med colleagues is often met with blank stares or flippant remarks about helping people being a means to a financial end. Additionally (and I hesitate to generalize), but in my experience, it seems that the women I encounter in my classes are difficult to engage about larger matters of vision. Older generations of feminists remember a time where young women were afraid to show their intelligence and competence in conversations that go beyond daily life and relationship issues. Could this still be going on?

Of course, the internet gives me the ability to connect with passionate women and men of all ages who are as eager as I am to teach and learn. However, the absence of face-to-face interaction nags at me–savvy as I may be at building relationships in my social networks online, those professional relationships become the most meaningful and permanent only after meeting in person. All this leaves me in a sort of liminal space, somewhere between the students I spend time with every day and the mentors who show me what is possible.

So here’s an open question for Disruptive Women: How does one go about establishing a peer group, one that gathers like-minded young people (women, in particular)? With or without access to the internet, during college as well as later in life, how did you find the people who engaged you?

By Rebecca Camp. AUSTIN, TX– Today’s SXSH conference (South By Social Health) saw many successful, multi-disciplinary approaches to weaving together new media and health care. I was bothered, however, by a theme that’s becoming increasingly common in the health care conversation: patients treated as consumers.

When a company follows capitalistic principles, the goal is to increase value by offering better services at a lower price. The company strives to improve their bottom line by offering more value than their competitor, in an effort to put their competitor out of business. Offering good customer service complements this strategy. In industries other than health care, the result is a benefit to the consumer: quality products and service at a lower price. Southwest Airlines, for example, employs a very effective social media presence. They respond to complaints tweeted by customers, which is has garnered the company praise in addition to a loyal customer base. But does this consumer-centered strategy translate to health care?

Mayo Clinic is held as a model for value in health care, but attributing their success to “consumerism” is off-base. The new media strategies being presented by health care institutions at SXSH essentially boiled down to damage control by tending to disgruntled Twitterers, and analysis of the types of complaints being registered. Though claiming to be influenced by social media mavens at Mayo’s Rochester flagship, the strategy is misguided and far removed. Mayo Clinic works because of a philosophy of care that puts the needs of the patients first—which does not equate to reactionary PR moves on social media sites. Absolutely nothing about their strategy distinguished it from other industries—and in the context of health care, replicating the strategy of Southwest Air and its ilk borders on insulting. Mayo Clinic avoids the noisy Twittersphere when addressing something as important as patient care; when a complaint is registered, that’s what their specialized center for patient service is for. Their Sharing Mayo Clinic blog allows a community of patients, staff, and families to form, which anticipates service problems before they even occur. This is the absolute obligation of companies in charge of delivering health care to a society.

My issue is also a philosophical one.

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The following guest post is by Jennifer Smock, who is a Graduate Student, Masters of Public Health, at Purdue University as well as Assistant Project Manager, Purdue Homeland Security Institute, and Project Manager, Purdue Emergency Preparedness Office.

For the first time in history, we are able to listen to public’s concerns… well pretty much about everything!

Why is this important?

Major corporations such as Dell, Comcast, Pepsi, IBM, and Microsoft, care greatly about what people are saying on social media sites about their products.  You may have noticed this change in such Microsoft commercials (“Windows 7 was MY idea”), or Best Buy commercials (asking questions to a stadium full of employees).  Both implying they are listening and interacting with people to better serve their needs.  As a result, they have built trust with their consumers and are profiting because of it.

Who uses Twitter anyway?

More and more people every day.  In the fall of 2009, it was found that one in five internet users use Twitter or another service to share updates or to see updates about others, which significantly increased from one in ten in April 2009 (Pew Internet, 2009).  There has been a recent Twitter explosion growing from 2 million Twitter accounts in December of 2008 to 17 million May 2009 resulting in 83% increase, and an astonishing 3,000% increase from a year ago! (ComScore, 2009)

Ok ok… What does this have to do with healthcare?

Before putting out health messages, wouldn’t it be great to better understand what the current barriers and benefits people are already talking about using these informal channels?  This could displace rumors and fine tune messages without the time and effort of focus groups.  For instance, there is a current distrust in the H1N1 vaccine as recognized by the news media:

“Of all the big questions facing our country, there’s one in particular that touches us in an immediate and personal way. It involves the H1N1 flu vaccine … and for many perplexed Americans, the question comes down to this: is the vaccine really a healthy choice? Despite what we’ve heard from public health authorities, some Americans have their doubts.”

-CBS NEWS

In response to the recent change in way clinicians, public health practitioners, and lay-people obtain information, the Centers for Disease Control and Prevention (CDC) has recently introduced utilizing social media outlets to help communicate to the public.  These public health messages promote the seasonal and pandemic flu shots as the best weapon an individual has against contracting the flu.  This integration might have came a little too late.  Recent polls have shown a low rate of compliance with obtaining a flu shot for themselves and for their children.  Even though there has been many public health messages communicating the importance of the flu shot this season, 66% of adults surveyed said they will not receive the H1N1 flu shot, and even though children have an increased risk for complications, 45% of parents said they are not planning to get their child vaccinated (ABC News & Washington Post, 2009).

Bottom Line

The CDC is currently urging those in the healthcare field to integrate social media outlets to communicate to the populations they serve.  Listening and interacting with people will help build trust in all health messages.

The health care industry has been a bit “late to the game” when it comes to social media. However, this week at the Mayo Clinic in Scottsdale, approximately 100 health care communications professionals came together to explore strategies for catching up.

At an event hosted by Ragan Communications, speakers from Mayo Clinic , Beth Israel Deaconess Medical Center, Operation Smile , Kaiser Permanente and others all came to share their experience jumping into the world. Each of us are exploring the opportunities that social media presents to us as communicators, while at the same time balancing the regulations within a fairly conservative industry. Concerns about protecting patient privacy and overcoming cultures that too often fear transparency were significant challenges for all.

It was great to hear from the organizations who are proactively exploring all that the Web 2.0 world has to offer. And I am glad I was able to share Kaiser Permanente’s journey with my friend and colleague, Dr. Ted Eytan by my side.

As Ted and I have shared here on Disruptive Women before, Kaiser Permanente was shocked into the world of social media. However, in the past couple of years, it has become central to all our public relations efforts. By coupling social media with other outreach strategies, we have built solid relationships with influentials throughout the industry who we often discover are speaking about us, without our involvement.

When we entered the social media space, we did so with the recognition that we had obligation to tell our story. What we didn’t understand at the time was that the more we told our story, the more others would come to understand it and begin to re-tell it for us. While it remains critical that we continue to proactively share our story, we now understand that the voices of those independent third-parties — our members, our employees, other influentials — re-telling it will always be more powerful.

Big news: The FDA is holding a public hearing to discuss online promotion of FDA-regulated medical products – including prescription drugs, prescription biologics, and medical devices. The hearing will be November 12 and 13, 2009 in Washington, DC (registration closes October 9 – see also registration instructions from Eye on FDA), but public comments can be submitted in writing or electronically now through February 28, 2010. View the docket details and full Federal Register notice.

A common reaction around the Web has been “Finally!” – with remarks like “This is NOT a Hoax!” and “Just in time for Web 3.0,” the FDA has set a date to start figuring out “how to deal with Web 2.0.” (NPR Health Blog).

But after the initial shock and sarcasm subsides, the potential significance of the FDA’s (albeit long overdue) move forward this week starts to sink in – this could result in the most significant set of regulations since the FDA’s guidelines for broadcast direct-to-consumer (DTC) advertising in the late 1990s. We’re talking industry-changing stuff here – or rather, industries-changing, because you can be sure that pharmaceutical companies, physicians, consumers, Internet and social media companies, the advertising and public relations industries, and everyone whose revenue includes online advertising are all major stakeholders in this public policy debate.

So what has the FDA highlighted as the key elements for discussion of this issue? (List below drawn from the 9/21/2009 FR notice)

1. For what online communications are manufacturers, packers, or distributors accountable?
   • (paraphrased) What communications and discussions should be considered “by, or on behalf of” versus independent of influence from these companies – and when and how should companies “disclose their involvementor influence,” particularly “on third-party sites”? Should different types of online media platforms and different intended audiences of these platforms be considered differently when addressing these questions – if so, how?
2. How can manufacturers, packers, or distributors fulfill regulatory requirements… in their Internet and social media promotion, particularly when using tools that are associated with space limitations and tools that allow for real-time communications (e.g., microblogs, mobile technology)?
   • (paraphrased) How should product information be presented on these platforms so that users have appropriate access to both risks and benefits?
3. What parameters should apply to the posting of corrective information on Web sites controlled by third parties?
4. When is the use of links appropriate?
   • (paraphrased) Should there be rules about the use of “links to and from Web sites,” including links to or from unbranded websites to or from clearly branded company websites? And what research and data exists about the click-rates in different contexts of users seeking information about medical products?
5. Questions specific to Internet adverse event reporting
   • (paraphrased) How are companies that are obliged to report adverse effects of products using online media tools, if at all, to monitor information about adverse effects of their products? Should these companies be obliged to monitor and/or report information from online communications concerning adverse effects of their products?

We – and the FDA – want to know what you think. What are your gut reactions to all of this – do you find anything particularly worrying, are there any potential outcomes you’re especially hoping for?

If you submit any comments to the FDA – and we hope you will – come by and tell us about it in our comment section here (and we promise to do the same). More information about the public hearing and submitting comments is available here.

This month, Disruptive Women welcomes Andre Blackman, Health Communications Analyst at RTI International, a non profit research organization, as our July Man of the Month.

Andre Blackman has an extensive background associated with science, technology and public health, conducting research in institutions such as the Naval Research Lab, NASA and WESTAT. This merging of technology and health has proved helpful in his current work in Health Communications.

Andre is very passionate about the role of new media, mobile technology and other emerging technologies as it relates to health communications and public health in general. You can find his thoughts on the intersections of health and technology through his blog, Pulse + Signal and via Twitter.

The past few years have seen a significant increase in the use of emerging technologies to improve public health all around the world. From grassroots initiatives empowering citizens in low-resource areas to making sure consumers get the healthcare they need – changes are happening for the better. This article will aim to look at a specific area of the ‘citizen empowerment’ – the application of SMS (Short Messaging Service – or texting) and mobile phones in public health.

With the onset of social tools such as social networking sites (Facebook, Myspace, etc.) and real time information hubs such as Twitter, we are exposed to numerous ways to stay connected to each other. Our mobile devices are equipped with applications that allow us to do a myriad of things – many of which focus on entertainment and productivity. Another very important part of our lives is maintaining good health and the mobile phone is making strides in that area. mHealth is the term that has been coined to describe the interaction of mobile technology with the improvement of health.

mHealth is exploding onto the scene as the next big technology boon for public health – the main reasons this is true are twofold: ease of implementation and relative low cost of operation/maintenance. This is especially true in the developing world and in low-resource areas where technology options are relatively sparse. The use of SMS has become a tremendously powerful way for health clinics in Africa to communicate with their community health workers who are traveling to villages to tend to patients. Imagine the ability to significantly reduce fuel consumption and get real time data on medical adherence in a world where it make take several weeks to get this information.

All of that from a technology that for many of us in the developed world may take for granted.

A few months ago I presented this information at the North Carolina Division of Public Health – here is the presentation that touches on the basics of mobile technology and how it can be applied to the public health landscape. It is by no means comprehensive but gives a good idea of where things are and thoughts on where things can go in the near future.

Private sector organizations such as Voxiva have been taking the lead on mobile initiatives, especially in health. Nonprofit organizations and local health departments have also been dipping their toes into the use of SMS technologies to get health information out to residents. The government has also become a supporter of mHealth initiatives and the Centers for Disease Control and Prevention (CDC) continues to innovate in this area. Several weeks ago, I wrote about a hypothetical situation in which public health could benefit from a mobile application called The Extraordinaries, which uses the free time of consumers to volunteer their time for good.

From a recent article on mobile communications in health via Mobileactive.org:
“Mobile provides a fantastic channel for communication,” said Erin Edgerton, senior social media strategist at the CDC. “It’s always on, always with you and provides personal access to information.”

I heartily encourage you to begin exploring this venue of health communications and figure out how you or your organization can integrate strategy with mobile technology.

Additional Articles/Resources:

Mobile Active – a great starting point for learning about using mobile technology for social impact. Contact them with any questions

PopTech – Can Your Cell Phone Change Lives? My article on mHealth

Texting4Health – conference and newly published book

ISIS initiative – sexual health information/STD prevention through SMS technology