We hope you remembered to wear red today!

The Heart Truth®—a national awareness campaign for women about heart disease.

Organized by the Foundation for the National Institutes of Health (FNIH) as part of The Heart Truth’s American Heart Month festivities, “Friday, February 3rd is National Wear Red Day®, on which Americans wear red to show their support for women’s heart health.”

National Wear Red Day® is only the beginning, though. One of The Heart Truth’s signature events, The Red Dress Collection Fashion Show is also held during American Heart Month, as a kick-off to New York Fashion Week. This year’s show is being held Wednesday, February 8th. You can learn more and see highlights from last year’s Red Dress Collection Fashion Show here.

American Heart Month, National Wear Red Day®, The Red Dress Collection Fashion Show and all of The Heart Truth’s other initiatives, events and activities serve to further one objective — increasing awareness about heart disease among women and helping women take steps to reduce their own personal risk of developing heart disease. To learn more about the organization and its mission or find out how you can get involved, check out The Heart Truth’s website, Facebook page and Twitter profile.

By Carrie Winans

The Disruptive Women in Health Care blog continually aims to encourage discussion and debate among readers about emerging issues and topics in the health care world. Historically, one of the ways that we have done that is through our weekly round-ups – that is, posts containing summaries and links to some of the big stories in health care news for the given week, with some original commentary and content sprinkled in as well. The way we see it, there is just too much happening in this burgeoning industry; it’s hard to keep up, especially when you’re busy disrupting and making headlines in the health care world yourselves. We know the weekly round-ups have been on hiatus for a while, but are happy to report that they’re finally making a comeback. Each week, we’ll be gathering some of the biggest health care news you can use from at home and abroad for posting on Wednesdays. Feel free to comment on what’s included and send us some links to articles to be considered for next week!

Has your week been too disruptive for you to keep up with the news?  Disruptive Women are on the case!  Here is this week’s round up of some of the most pressing issues here in America and around the world.

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By Hope Ditto. Hopefully it is no secret to our blog readership that above all, the editorial team here strives to be Disruptive – in more than one sense of the word. As a news outlet in this century’s ever-changing media landscape, the niche we pride ourselves on filling is just that – disruptive, at least in the sense that we will have the conversations no one else is having, raise the questions no one else is asking and explore the angle no one else is pursuing. We don’t shy away from controversy, nor do we balk at intimacy – as long as topics are well-researched, provide substantiated arguments and at least acknowledge there is an opposing viewpoint, there are almost no topics we consider off-limits.

There is, however, one area we don’t touch (in fact, we avoid it at all costs): partisan support for a candidate. While certainly all of our individual bloggers have opinions and perspectives, points of view and inherent biases, we will never run posts that are blatantly promoting one candidate for elected office over another.

I say this as a caveat to this post, the purpose of which is to announce a new series we’ll be running this year on the Disruptive Women in Health Care blog in which we explore the presidential candidates’ positions on health care and health policy, where they stand on particular aspect or aspects, what they envision to be an ideal health care system for this country and what role they envision the federal government playing in it.

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By Hope Ditto

If you chose to partake in what HuffPo referred to yesterday as “ your country’s empty displays of patriotic kitsch” — aka a State of the Union Drinking Game — last night, I certainly hope health care wasn’t one of your buzzwords.

President Obama delivered his 4^th State of the Union (SOTU) address to Congress last night, outlining his goals and his priorities for the nation in the coming year, and – as Sarah Kliff from the Washington Post’s WonkBlog put it  – “For health policy wonks, Tuesday night’s State of the Union speech wasn’t a thriller.”

In fact, in his nearly 70-minute, 7,000 word address, “President Obama mentioned Medicare and Medicaid… once. ‘Health care’ got two shout-outs. The Affordable Care Act? Not even a name-check,” (per Kliff).

To think of it another way, consider how Daily Briefing editor Dan Diamond broke it down — the president spent 44 words on health reform, accounting for 0.6% of the total speech.

As Politico pointed out, “Obama spent so little time on the [health reform] law that he didn’t even acknowledge an audience member the White House had brought to the speech — a cancer survivor who could have been an example of someone with a pre-existing condition who was helped by the law.”

The White House had announced earlier Tuesday that this young man, Adam Rapp, would be sitting in the first lady’s box. Rapp was diagnosed with testicular cancer on his 23^rd birthday, the same day that he would have lost health insurance coverage were it not for the Affordable Care Act (per CBS) – a potentially powerful testament touting the impact of ACA, and yet one that went unmentioned.

All of this is more staggering when you consider what a departure it represents from years past.

Medscape Medical News reports that, “Obama mentioned either “healthcare” or “health insurance” only 3 times, compared to 6 references in 2011 and 10 in 2010.”

The California Healthline blog lays it out a bit differently, explaining that, “Two years ago, the president spoke for several minutes — a total of 570 words — in urging Congress to pass the Affordable Care Act. Last night, Obama devoted just 44 words to his health reforms — never once touting the law’s actual impact, like 2.5 million young Americans gaining coverage through the ACA. In comparison, the president spent more than 130 words on his renewed cause of streamlining the government.”

And for you visual learners and/or infographics enthusiasts like myself out there, Dan Diamond tweeted this graphic a few hours ago, which I think best serves to drive the point home.

Wondering what Obama spent 70 commercial-free minutes talking about, then? According to the Washington Post, the economy mostly. Check out WaPo’s interactive infographic breaking down the speech by time spent/mentions per subject, and how this year’s spread compares to his previous SOTUs, here.

Meanwhile, the GOP rebuttal, delivered by Indiana Gov. Mitch Daniels, was only marginally better to us health wonks – at least for our interest’s sake. While it steered clear of “repeal and replace,” it did echo Rep. Paul Ryan’s pitch for an overhaul of entitlement programs.

“Medicare and Social Security have served us well, and that must continue. But after half and three-quarters of a century respectively, it’s not surprising that they need some repairs,” Daniels said. “We can preserve them unchanged and untouched for those now in or near retirement, but we must fashion a new, affordable safety net so future Americans are protected, too.”

No one would deny that the SOTU, above all, is an act of political theater. But were there even more theatrics occurring last night than usual? Many Beltway insiders have seemed to indicate this, saying that the SOTU was not only a list of goals for the year, but also, as Kliff put it, “an opening campaign gambit.”

If that is the case, it raises some interesting questions about what we can expect to hear in the fall. After all, as The Hill’s Healthwatch blog pointed out, “Although Democrats insist that Obama will be able to campaign on the healthcare law, it was almost entirely absent from a speech that helped establish the themes and frames of his reelection campaign.”

Just because the president seems to be steering the narrative away from health care so far doesn’t mean it won’t be issue in the upcoming presidential election. Odds are that the Republican nominee – whoever it turns out he (or she… hey, you never know!) may be – will want to discuss health reform, as it has certainly been a hot topic on the campaign trail.

How important of an issue do you think health reform will be in the upcoming election? Will a candidate’s position on health reform and the Affordable Care Act impact your decision to support him or her? Tell us your thoughts in the Comments section below!

Gruber, director of the Health Care Program at the National Bureau of Economic Research, explains the Affordable Care Act (ACA) in comic book format

Millions of Americans disapprove of the Affordable Care Act without understanding what the act aims to accomplish or how it works.  Dr. Jonathan Gruber’s book “Health Care Reform:  What It Is, Why It’s Necessary, How It Works” breaks down the individual components of the act in order to give Americans a greater understanding of what all it includes and how its provisions will affect their daily lives.  Gruber discussed the book, ACA and the future of health care reform in the United States with an audience at Disruptive Women in Washington, DC last night.

Continue reading here…

By Magaly Blas. Gender inequalities have persisted over decades across all continents. Whenever we hear about gender inequalities we think in women who have lower access to education, jobs and health care compared to men. Women are also more prone to domestic violence, human trafficking, gendercide, and sex-selective infanticide.

So far we have seen women as victims of gender inequalities, but how about the role that women have as perpetuators of these inequalities? In many developing countries mothers, wives and teachers have a high acceptability of behaviors that maintain disparities between genders. For example, in some countries mothers teach their daughters that they have to cook and clean the house while their sons can keep playing. So when these daughters become mothers they assign their children the same roles, perpetuating this cycle. Mothers in some settings decide to favor her son over her daughter to attend the school and university. In some areas this is also true for health. In rural areas parents may sell their cow to pay the medical treatment of their sick son but they will not do this if their daughter gets sick.

Studies have shown that women with lower socioeconomic status and education are more likely to hold on to traditional ideas that perpetuate gender inequalities, and also more likely to perpetuate such ideas in the younger generation. For all of these reasons, it is important that in future awareness campaigns we place women not only as victims of inequalities (which gives them a passive role), but also as perpetuators of these inequalities.

My question to all of you is…Are we (as women who work for women’s rights) working to end the cycle of women as perpetuators of gender inequalities? Should we start by changing our own minds and own approaches towards interventions to decrease these inequalities?

By Glenna Crooks. Everyone now and again, you meet someone who rocks your world – in a good way. It happened to me recently. I treated myself to a workshop and among those attending was a young woman with such inquisitiveness, openness, honesty and humor that I instantly became a fan. She was comfortable in her own skin, passionate about her beliefs and disarming in her directness.  And, there was not a mean bone in her body. She could tell you anything – including the truth you might not want to hear –and be grateful she did.  She had rare courage and extraordinary presence for a young woman. I decided I wanted Disruptive Women readers to know her.

She has epilepsy and since November is Epilepsy Awareness Month, this is the perfect time. Please allow me to introduce you to Jessica Keenan Smith.

How do you hope Epilepsy Awareness Month will help?  

More than 70 Million children and adults worldwide are living with epilepsy. Three million of them are in the US. That’s more people than were living with HIV/AIDS in 2008. I’ll bet that surprises most people.

Of those 70 Million, for 70% there is no known cause. A little research money would go a long way toward reducing that 70% number and then to finding better treatments, and my highest hope – cures. More awareness will help drive more research funding and scientific  interest in this important area of health. That’s why an Awareness Month is helpful.

Many diseases have been around for centuries, but they have treatments – even cures. Why hasn’t epilepsy enjoyed that same happy ending?

Well, let’s start with the fact that you can’t even tell that most people with epilepsy have it unless they are actively having a seizure. Then combine this with the fact that a negative stigma still exists. Add in the fact that there are more than 40 different types of seizures and you’ve got a tough nut to crack.

These factors make epilepsy very difficult to recognize, never mind research and cure. (more…)

The following is a guest post by Nyaradzayi Gumbonzvanda who is General Secretary, World YWCA  and Dr. Nalini Saligram the Founder and CEO of Arogya World. It was originally posted on The Huffington Post on September 6th.

Non-communicable diseases (NCDs), which include cancer, cardiovascular disease, diabetes, lung disease, and mental health are one of the greatest health and development challenges of the century, responsible collectively for 2/3 of all deaths worldwide. Though all people the world over are susceptible to the threat of these chronic diseases, this is a women’s health rights and empowerment issue because these diseases impact girls and women differently. At the same time, women are a crucial part of the solution to this crisis.

Arogya World, World YWCA and other organizations have joined forces to form the Women for a Healthy Future movement. We are mobilizing women and men from around the world to sign a petition demanding that world leaders reduce the vulnerability of women and children to NCDs.

As advocates for women’s right to health and empowerment, we call on the world leaders during the forthcoming United Nations High Level Meeting on NCDs to consider the following critical factors related to women and NCDs:

1. NCDs have a direct impact on women’s health
NCDs are the #1 killer of women. A staggering 50,000 women lose their lives to NCDs every single day. More than 1,000 women die from cardiovascular disease, one of the four main NCDs, every hour.

Women are uniquely affected by NCDs. New research published in The Lancet (Aug 2011) shows that for women, especially pregnant women, the harmful effects of smoking are even higher than for men. When it comes to coronary heart disease, smoking is 25% more dangerous for women. (more…)

The following is a guest post by Karen Orloff Kaplan the CEO of the Ovarian Cancer National Alliance.

TEAL is on trend this September. Not only is teal a top fashion color for fall 2011, it’s the color of ovarian cancer awareness—and September is national ovarian cancer awareness month. Here’s how you can help raise awareness of this disease.

To support ovarian cancer awareness you can get involved in the Ovarian Cancer National Alliance’s United States of Teal campaign. The goal of the campaign is to have every state in America teal—which happens when state legislators pledge their support for ovarian cancer awareness. Twenty-four states are already teal—visit www.unitedstatesofteal.org to see if your state supports women with ovarian cancer.

The website also shows how you can contact your state legislators and urge them to pledge their support to the ovarian cancer community. We need your help to raise awareness of the symptoms, and expand federal research to improve treatments and support the development of a desperately needed screening test. (more…)

By Rozalynn Goodwin. Everyone seems to be quoting and tweeting the tender line of Miss Aibileen in “The Help”, “You is kiiiind. You is smaaaart. You is important.”

But there was another line in the blockbuster movie that moved me even more. I heard it and the heavens seemed to open. The light bulb came on.

Hilly Holbrook’s new maid is $75 short on one of the college tuitions for her twin sons and asks Hilly and her husband for a loan so she doesn’t have to choose which son should go to college. Doing the ‘Christian thing,’ Hilly refuses, “God does not give charity to those who are well and able.”

Twelve simple words from a fictional 1960’s character summed up our nation’s current political will regarding the poor. And allow me to condense this into just one word: selfishness.

We movie-goers were quick to see the bigotry in Hilly’s statement. The maid and her husband had been saving money from their meager wages for a long time and she wasn’t seeking a hand-out, but a loan she would pay off with her thankless labor. But I was also quick to see the hipocracy in those of us who identify ourselves as Christians regarding the poor–many like this maid are in temporarily tight spots by no fault of their own. I was convicted by the thought that a selfish Christian is just as much of an oxymoron as a Christian murderer. (more…)

The following is a guest post by WomanCare Global CEO Saundra Pelletier. Besides serving as the founding CEO of WomanCare Global, Saundra is an international marketing expert, published author, keynote speaker and executive coach.

By Saundra Pelletier. In 1965, Griswold v. Connecticut gave a married woman the right to use birth control to prevent or delay pregnancy as she saw fit. This guarantee of a basic human right led to other reforms that allowed millions more American women to decide the direction of their own reproductive lives.  This summer, we are proud to see another key reform go through: starting next year, the Affordable Care Act will allow even more women in the United States to be in charge of their own health by requiring new health plans to provide free birth control without a co-payment. These are hard-fought wins for women’s health and for women’s rights of which we can all be proud, but sadly the ability of a woman to choose when and whether to become pregnant is far from assured in other parts of the world.

Pause for a moment and imagine you’re not American, but from Sub-Saharan Africa – Ethiopia for example. You are 20 years old and have four children – the first of which you had when you were 15 and newly married. You’re worried about becoming pregnant again. You tried to get birth control once, but arrived at the clinic only to find the shelves bare and no way to access any form of birth control.  The thought of another pregnancy, whether by a husband who won’t take no for an answer, or by a stranger who might force his way upon you while making your way to fetch water for the family is overwhelming. You’re not in great health, and another pregnancy would take its toll on your weakened body. The chances are high that you might not survive pregnancy or labor to be able to take care of your family.

Globally, 215 million women would like to be able to prevent or delay pregnancy, but do not have access to the supplies that would allow them to take control of their lives. As American women, we know from our own experience that the ability to make our own fertility decisions has made an immeasurable impact on our own lives. For women in the developing world, access to reproductive health supplies would save lives and improve health, as well as the economic and social well-being of families and communities.

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The following was orginally posted last Thursday, August 4th on NIH’s Feedback Blog by Dr. Kathy Hudson.

This week a true pioneer in women’s health, Dr. Vivian Pinn, announced that she’s retiring from NIH. Vivian was the first Director of the Office of Research on Women’s Health (ORWH) and tirelessly led that office for almost two decades. But she was more than the leader of ORWH, Vivian has brought wide spread attention to the absence of women participants in biomedical research and the exclusion of women’s health in clinical decision-making. She made it her mission to highlight the importance of sex-specific differences in disease development, progression, and response to clinical interventions. She has tirelessly monitored the landscape of health research for women and has led efforts to set the research priorities. She understands that priorities won’t set themselves; it takes a passionate, intelligent, experienced, and insightful individual, with an incredible amount of support, to gather the right folks and figure out what we still don’t know but need to know.

Dr. Pinn has also been a leader in the effort to increase the representation of women in biomedicine and to make sure that women who pursue careers in health sciences have equal footing with their male colleagues. Looking around NIH today and the vibrant extramural community, women are an integral part of the science that goes on across the US. I know that Vivian can remember a time when that was not the case, in fact she sat amongst only white male classmates in medical school in the 1960’s. What a difference we have seen and we owe so much of that to women like Vivian Pinn.

This is a big loss for all of us who have worked with her over the years, but she leaves behind a robust legacy of putting women’s issues on the radar at NIH. Vivian, we wish you the best. We will keep pushing for women’s health and hope that we will make you proud.

Women for a Healthy Future

Non-communicable diseases (NCDs), commonly known as chronic diseases, cause two out of three deaths worldwide, and are the leading cause of death for women around the world.

We have a once-in-a-lifetime opportunity to tackle NCDs, considered to be one of the 21st century’s greatest health and development challenges. In September, world leaders will gather at the United Nations (UN) for a historic summit on NCDs. The decisions they make will impact the lives of millions.

NCDs threaten women’s lives and our children’s future. Yet, we know that 80% of cardiovascular disease and diabetes and 40% of cancers can be prevented by avoiding tobacco, increasing physical activity and eating healthy foods. It’s going to take strong commitments from the world’s leaders and sweeping policy changes to reduce women’s and children’s vulnerability to NCDs.  

As a result, organizations representing global health, women’s health, child rights, and youth perspectives have come together to form the Women for a Healthy Future movement. This movement is aligned with UN Secretary-General Ban Ki Moon’s “Every woman. Every child” initiative and is mobilizing women from around the world to demand action against NCDs.

Raise your voices. Sign the petition. Tell your friends.

If we gather 10,000 women’s signatures, we will take them to the media, to world leaders gathered at the UN, and to business leaders. We need your support to show the world how deeply we care, and to ignite action against NCDs.

Don’t miss out on this year’s Ovarian Cancer National Alliance Annual Conference in Washington, DC, July 9-12! They have an incredible array of speakers and activities planned for their 14th Annual Conference, “Turning Promise Into Action.”

The keynote speaker is Olympic medalist Shannon Miller, who will speak about her battle with ovarian cancer. Ms. Miller was diagnosed with ovarian cancer in early 2011, and has been writing about her journey on her healthy living website.

On Sunday night, you can  rock out with N.E.D., an amazing band dedicated to fighting women’s cancer. This alternative rock band is made up of gynecologic oncologists from around the country. You can hear one of their original songs in this video about OCNA’s 2010 Advocacy Day.

The conference concludes with advocacy visits to Capitol Hill. OCNA will arrange for you to speak with your legislators and their staff about why ovarian cancer matters to you. Please note that you must register separately for Advocacy Day; the registration deadline is June 3.

One of the most poignant moments at each conference is the Remembrance Ceremony commemorating the lives of women lost to ovarian cancer. You can submit original poetry and other remembrances to be included in the ceremony.

Register here. If you have any questions contact Elizabeth White at ewhite@ovariancancer.org or (202) 331-1332.