My Personal Stroke Story

IMG_0794I first shared my story in 2008 as the Passion Speaker for the American Heart Association at the Go Red for Women Luncheon in San Antonio, Texas. And I told my story many times in the next few years to the various corporate partners and in private homes where both men and women had gathered to learn about women’s risk for stroke.

Today, more than 16 years after having a stroke, I continue to tell my story with others as a You’re the Cure advocate in Washington DC. I presented at the Maryland Million Hearts Symposium and on Washington DC’s CBS TV station WUSA9 last winter. You can watch my interview with WUSA9 here.

I am proud to be an Inaugural Member of the Circle of Red for the Greater Washington DC Circle of Red in 2014. (more…)

Introduction to Special Series on Stroke: World Stroke Day, Women & Stroke, and the Stroke Comeback Center

Stephanie Mensh

Today, Disruptive Women in Health Care begins a special week-long series to raise awareness of stroke in recognition of World Stroke Day, providing opinion and actionable information, and joining in the celebration of 10 successful years of the Stroke Comeback Center in Vienna, VA.

October 29, 2014 is World Stroke Day and the launch of a 2-year, world-wide campaign, I am woman: Stroke affects me, sponsored by the World Stroke Organization (WSO) and supported by national organizations like the American Stroke Association (ASA).  Women have a higher risk of stroke than men, a higher mortality rate from stroke than men, have worse outcomes from stroke than men, and often receive less care than men, despite responding equally well to care, according to the WSO.  Women are the predominant caregivers, often resulting in health issues that then may increase their own risk of stroke.

Each year, 15 million people worldwide suffer a stroke. In the U.S., about 790,000 Americans suffer a new or recurrent stroke. Stroke is the 4th leading cause of death, and a leading cause of disability.  The ASA estimated that Americans will pay about $73.7 billion in 2010 for stroke-related medical costs and disability. (more…)

Passport Stamped for the Land of Pain: Learning to Live in a Foreign Land

Janice Lynch Schuster

The following post originally ran on the Pain Action Alliance to Implement a National Strategy’s (PAINS) website.

For many years, my passport was stamped in the land of the well, but a poor response to oral surgery in 2013 cancelled that document, leaving me in the land of the sick, the suffering, the other. While I was a well-one, I’d hear stories from that other country—and listen as best I could when others told tales of their visits– but I did not know what it truly meant to live there all the time.

Learning to live in another country is hard work. There are unfamiliar customs to understand, a language to learn, awkward situations, foods and beds and places that do not quite feel like home. The currency may not convert.

Once you become a chronic pain patient, as I have, you discover how much of your life is no longer your own. (more…)

Preventing Prescription Drug Abuse: Are You Doing Your Part?

Terri Prof Headshot 0412Do you know what your teen is up to when you’re not looking?  What about your spouse, your parents and your friends?  Hopefully they aren’t rummaging through your medicine cabinet to find something they can take to get high. Many of us would never think to use a prescription drug for something other than its intended purpose, or to take something that wasn’t prescribed for us and absolutely necessary.

Unfortunately, there are a lot of other people who not only consider this, but act on the impulse to misuse and abuse prescription drugs.  Sometimes they work the system and see a doctor, or multiple doctors, and get the prescription for themselves, but often, they are looking through your medicine cabinet when you’re in the other room, getting them for free from friends or buying them online or from dealers.

Prescription drug abuse is a growing problem; according to the Centers for Disease Control it is an epidemic.  Just like any addiction, it can ultimately ruin or even end someone’s life.  (more…)

Consumer Centricity: Changing what we know about Health Care

Cyndy Nayer

Consumer Centricity is about to change everything we know about health care. It is creating a health investment community where transparency is king and social exchange reinforces value.

This is the rise of the consumer health investment marketplace. Technology is improving the conversations and exchange of data—social media (providing peer-to-peer information and counseling), quantifying technology (providing measures of health to the person without the need for clinical reporting), and financial advice (tune in to some of the social media pages for patient and cost advocacy). We are witnessing the handoff of health care control to the consumer who does, in fact, have a bigger financial stake than ever before, but who also can leverage data for answers to personal questions and priorities.

At last the consumer is developing a voice in health care, identifying the priorities of lifelong health that he or she values. There are 4 reasons that consumers are building noise on their preference in health care:

  1. Enormous increases in consumer-driven health plans with high deductibles. (more…)




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